Press Apology from Daily Mail

posted: 10/11/2010

Here's a success story. Complaints from people with HIV to the Daily Mail about its inaccurate and stigmatising report about supposed HIV risks to a toddler pricked by discarded needles while at a New York, USA, hospital have ended with a correction and apology being published.

The report contained a remarkable three major mistakes

• It wrongly suggested the girl might have to wait six months for a HIV test, when modern tests can give an accurate diagnoses from a month after potential infection
• There has never been a case of a person being infected with HIV from a discarded needle
• Also HIV is no longer a 'death sentence,' as new treatments mean that people diagnosed with HIV nowadays, if treated early, can expect a near normal life expectancy. 

Join Press Gang if you would like to help

If you want to help end stigma and false information about HIV in the press, you can join NAT's Press Gang. 

NAT monitors the press daily for reports that are inaccurate or stigmatising towards people living with HIV. Press gang members, people living with HIV, challenge any inaccurate and stigmatising media coverage and provide a human face to HIV in the UK.

Press Gang is a group of people living with HIV working together, with support from NAT, to improve how the media portrays HIV and people living with HIV.

Press Gang members are alerted to stigmatising coverage and given advice on contacting journalists, making a complaint, getting a letter to the editor published, and sharing your story.

Please email Press Gang for more information about joining.
 

Dail Mail

Better Psychological Support Needed

posted: 15/09/2010

People living with HIV are not having their psychological needs met properly, says a new report by NAT (National AIDS Trust).

The report Psychological support for people living with HIV  shows that not getting adequate psychological support can have a severe impact on people's health and well-being. Anxiety, depression and other emotional and mental health problems are all far more common among people with HIV than is usual for people.

NAT says more must be done to give proper support – at present these needs are often overlooked, because the focus is mainly on signs of physical health, like CD4 counts and Viral Load.

People with HIV at George House Trust helped 

People with HIV met at George House Trust to help NAT understand mental and emotional support health needs better, and to talk about the experience of using services.

At George House Trust we gathered black African men and women. Positively Women (now Positively-UK) gathered women, and GMFA gathered a group of gay men. Altogether 32 people talked about emotional and mental health needs and services for people with HIV with workers from NAT. 

Experiences of the immigration system and the impact of these on emotional and mental health were a big issue in Manchester. Women at Positively Women talked a lot about peer support from other women with HIV, and the gay and bi men at GMFA talked about their experience of using mental health services. 
 

There were four main issues leading to the need for support :

• managing HIV - coping with diagnosis, telling others, and coping with the physical effects of HIV and treatment; how poor emotional and mental health affects taking treatments properly; services for older people with mental health problems such as HIV-related dementia
• psycholigical impact of having HIV - anxiety, depression, suicidal thoughts, stigma, low self-esteem, coping by drinking heavily
• managing relationships - telling people, help during a relationship crisis, help with forming relationships, being isolated, bereavement, negotiating safer sex
• the needs of migrants especially asylum seekers - the harm lengthy uncertainty over immigration status causes.

What forms of emotional and mental health support are there?

• HIV support organisations - peer support and meeting with others like yourself is highly valued, where it is available
• HIV clinicians - HIV clinicians rarely ask how people are coping emotionally
• NHS psychological support services - some good experiences but a great deal of frustration about long waiting times, severe cases only being helped, everything has to be strictly HIV-related when many serious issues are indirectly connected
• Counsellors - can be very helpful, but some bad experiences; waiting times and travel costs were problems
• Informal support - from partners, friends, family, community - for gay men this was their main source of support; for women and Africans this can be good or a problem
• Other support - Social Services seen as only for the dying, support from churches can be good or harmful, the internet's potential 

Deborah Jack, Chief Executive of NAT, says:

“People can often find it difficult to come to terms with an HIV diagnosis and deal with the ongoing implications. Psychological support can be as important for the health and well-being of someone living with HIV as going to the doctor or taking treatment. This form of support can be the crucial difference between finding every day a struggle, and feeling able to cope with and enjoy daily life."

"Providing such psychological support is more cost-effective in the long-run as it means that people living with HIV can manage their condition, take treatment properly and stay healthy. It is essential that, at this time of cuts, decisions are not made which may save money in the short-term but will increase the burden on the NHS in the long-run.”

Key findings from the report include:

• Evidence of higher rates of psychological need amongst people living with HIV, compared with the general population
• HIV and mental health problems are both highly stigmatised, and this often makes people even more unwilling to say they are having mental health difficulties
• The psychological needs of people living with HIV are not being met fairly across the whole NHS
• Investing in psychological support for people with HIV has significant benefits in the long-run for individual and public health.

Mark (not his real name), who is living with HIV, spoke about the impact of having a mental health problem:

“They reduce our immunity… If you are carrying so many things in your head there is no way you’re going to cope with your medication. So it comes back to HIV.”

Clinical Benefits

There are clinical reasons why psychological support is beneficial. Research shows the big impact that mental health can have on physical health and how someone copes with having HIV. For example, depression has an effect on how well someone takes HIV treatment properly which is essential. Psychological well-being also influences people’s behaviour, and depressed, anxious and upset people are more likely to have unsafe sex, drink too much and use drugs.
NAT argues that investing in better psychological support for people living with HIV saves money in the long run, not only because people will be healthy for longer, but also because people are then less likely to miss medication or have unsafe sex, and this reduces the risk onward HIV transmission to other people.
 

Psychological Care Standards for HIV
One of the recommendations of the report is that the British Psychological Society and others interested publish standards for psychological support services for people with HIV. The British Psychological Society has formed a working group to prepare these standards, and NAT is a member of this group. For more information about these standards or to order hardcopies of the report contact policyandcampaigns@nat.org.uk.

A copy of the report is going to each HIV clinic in the UK, funded by the drug company Abbott.

“Mental health has become a major focus for Abbott's HIV community engagement. Despite the advances in and access to treatments, many people living with HIV tell us that the psychological burden of the disease significantly compromises their quality of life. NAT's report will help inform all stakeholders about the need to consider the psychological impact of living with HIV on the quality of life and, consequently, health care provisions,” said an Abbott spokesperson.

The report is available here

and to download direct from NAT, with more information on HIV and psychological issues 
 

Police, Prosecutors, Press Bungle HIV Crime

posted: 01/09/2010

Despite new police HIV crime investigation guidelines, HIV prosecution guidelines and new press HIV reporting guidelines, it appears that all were ignored and left on office shelves in the latest prosecution for reckless HIV transmission.
 

A man accused of passing on HIV to a woman of 19 was jailed for a year, and given a five year sexual offences prevention order yesterday.

Nicholas Richards, who is 31, and lived in Sittingbourne, Kent, admitted Grievous Bodily Harm (GBH) for the HIV offence of reckless HIV transmission at a previous hearing at Maidstone Crown Court.
 

Richards was also given a five-year sexual offences prevention order, which stops him from having unprotected sex or not telling his partners about his HIV.
 

He was jailed yesterday for a year on that charge and was sentenced to a further year for an unrelated GBH charge, for attacking a man in Medway, Kent.  

The court heard Richards exposed the 19-year-old woman to HIV in June 2008. The young woman, who cannot be identified for legal reasons, found out she had HIV during routine blood tests when she became pregnant. Her baby does not have HIV, say the police.
 

Police comments
After the hearing, Det. Ch. Insp. Simon Wilson said the crimes committed by Richards were "abhorrent and callous" and had far-reaching consequences. He said: "Not only did he knowingly infect a young girl with HIV - a disease she will have to live with for the rest of her life, but he also selfishly put her child at risk too. Thankfully, the sheer bravery the victim showed in coming forward immediately and giving evidence in court helped us secure a conviction against him and I would pay tribute to her courage." He urged anyone else who had "fallen prey" to Richards to contact the police.
 

George House Trust comment

 
More Police, Crown Prosecution Service and Press failings

Because HIV crimes are complex to investigate and prove beyond reasonable doubt, and because of the harm HIV stigma and discrimination cause, police and prosecutors have strict guidance and policies to follow in HIV cases. This case seems to prove that these were ignored. The investigation and prosecution system cannot be relied on to work properly in all HIV cases.

Police

It appears that the Police ignored their own HIV investigation guidelines. They have clearly ignored their own Communication Strategy guidance, because Det. Ch. Insp. Simon Wilson should never have made his inaccurate and sensationalising comments and blatantly fished for other people to come forward who may have ‘fallen prey’ (his words) to the man.
 

Crown Prosecution Service

The Crown Prosecution Service appear to have yet again ignored their own HIV prosecution policy and guidance. Prosecutor Roy Brown seems to have been the man responsible. Guilty pleas should not be accepted without rigorous efforts to obtain transmission evidence.There is no evidence from the media reports that phylogenetic analysis was carried out as the prosecution guidelines require. So we can't be sure the man found guilty did pass HIV to the young woman.

Press

It was only the middle of August, just a few weeks ago, that the managing editor of The Sun told us about his paper’s commitment to responsible reporting of HIV at the launch of NAT’s new press guidelines. Graham Dudman, Managing Editor at The Sun, we were told, ensures his staff use the guidelines. He says: “At The Sun we pride ourselves on getting the facts right and staying up to date. This can be a challenge in sensitive areas like HIV. NAT's guidelines for journalists are very useful, really simple to work with and lay out all the facts reporters need.”
 

He seems to have forgotten the press guidelines for HIV very, very quickly. The Sun’s headline for this HIV news story: ‘HIV fiend jailed for infecting girlfriend’
 

News reports

BBC

Independent

Daily Mail

The Sun

21st Century Press Guidelines

posted: 13/08/2010

The media reporting of HIV is often wrong and negative. New detailed Guidelines for Reporting HIV are out today to help editors and journalists write well about HIV in the UK.

The guidelines dispel common myths about HIV, provide up-to-date information and tell journalists where to go for more information.

The new guidelines, from NAT (National AIDS Trust), are backed by the National Union of Journalists, the Press Complaints Commission, and the Society of Editors.
 

Accurate, up to date, respectful

HIV has changed a lot in recent years. Testing and treatment, quality of life and life expectancy are radically better. The guidelines help journalists report about HIV in the 21st century. For example, it is no longer correct to suggest that HIV is a death sentence, that HIV automatically leads to AIDS, or that you must wait three or six months for a test, all of which have been said in recent news reports.
 

Deborah Jack, Chief Executive of NAT, says “The public get a lot of their knowledge about HIV from the press, so it is important journalists get it right. Accurate reporting benefits public health, dispels myths, undermines prejudice and increases understanding. We hope these guidelines will help journalists update their knowledge about HIV in the 21st century.”
 

News Mistakes

NAT monitors the press for inaccurate coverage about HIV. Some of the most common mistakes journalists make include suggesting there is a risk of HIV infection from discarded needles, biting, or spitting, reports often treat HIV and AIDS as if they are the same thing, and suggest HIV is deadly.
 

Graham Dudman, Managing Editor at The Sun, ensures his staff use the guidelines. He says:
“At The Sun we pride ourselves on getting the facts right and staying up to date. This can be a challenge in sensitive areas like HIV. NAT's guidelines for journalists are very useful, really simple to work with and lay out all the facts reporters need.”

George House Trust hopes The Sun reports HIV responsibly in future – in June its front page was a scare-mongering report suggesting British troops could get HIV from old needles or razor blades in Afghanistan. It published this on the front page, despite including a comment from NAT denying the claim that troops could be infected in this way. There was no HIV risk to troops but The Sun still printed the story, and on the front page. This was then repeated elsewhere, including on BBC radio.

Stephen Abell, Director of the Press Complaints Commission said "While public and media understanding of HIV and AIDS has improved, it remains vital that the press takes particular care when reporting on these issues - both by being accurate and by respecting the privacy of those who live with either condition. The PCC has a clear role to play in resolving complaints, upholding and improving standards, and providing a public service to those who have concerns about the press."

Download the Guidelines for Reporting HIV 
 

Final Demand – mental health and debt

posted: 27/05/2009

Chris Fitch, a researcher for the Royal College of Psychiatrists, is the author of Final Demand, a booklet written to help health and social care staff, and accompanying resources for to use in support.
He talks here about his background and experience in debt advice with people who are depressed, anxious, or who have other mental health problems, all of which are very common among people living with HIV.
 

How did you get involved in debt and mental health?
Doing field work in 2003, I met people living with "debt and a diagnosis", and not getting help. At the time, I figured there must be a solution, but when there wasn't one, I tried to fill the gap a little.

What is Final Demand about
Final Demand is a pocket guide about debt and health. It shows health and social care workers how to help indebted clients, with the aim of preventing financial or mental health crises. It has been sent to 110,000 GPs, nurses, psychiatrists and social workers.

What is the relationship between debt and mental health problems?
Debt can be stressful, anxious, and downright depressing. Although associated with economic circumstance, debt can trigger major life changes, and individuals often struggle with a toxic cocktail of financial and personal issues. Four million adults could be living with debt and mental health problems. One in eleven British adults are seriously in debt. Half of adults in debt have a mental disorder, while one in four people with mental disorders also have debts.
 

Are you expecting mental health issues to increase in the recession?
Unemployment, repossession, and debt will increase demand for mental health services. As the recession continues, people not used to financial difficulty will increasingly be hit hard mentally. We can stop short-term distress becoming long-term disorders by maintaining existing mental health services, health advice and support for the jobless and indebted, and investing in linking money advice with health services.
 

What should professionals do?
They should consider debt as an underlying cause in stress-related illness, ask simple questions about debt in routine assessment, refer people to an appropriate debt advice service and don't just refer and forget, but support the adviser and the client/patient.
 

How can we improve the situation?
Governments should invest in tackling debt and mental health, as they have with unemployment and mental health. Banks should acknowledge that one in six of their customers have mental health problems, and take this into account when recovering debts.
 

At the Final Demand website you will find

• Final Demand booklet - an online web version
• Final Demand booklet - a pdf version you can download and print
• Tools for workers - Debt and Mental Health Evidence Form
• Getting help

Final Demand is funded by the Financial Services Authority and published by the Royal College of Psychiatrists.

Source