Hardest Hit March - Wednesday

posted: 09/05/2011

1 in 6 people living with HIV have lived in severe poverty in the past three years. On Wednesday 11th May there is a national march in London and mass lobby of MPs at the House of Commons to protest against the government's planned cuts and changes to benefits.

The cuts and benefit changes will make matters worse for the many people living with HIV who rely on Disability Living Allowance, Incapacity Benefit and Employment Support Allowance.
 

National march and lobby of MPs

People from across the country are coming together on May 11th in London to protest against these cuts and changes and to the cuts to local services which provide key services for people living with disabilities including HIV.
 

People with HIV will be joining the march and lobbying of MPs and if you'd like to be part of this and walk alongside the THT and NAT and other banners, you can find out where and when to meet up by contacting Guy Slade at THT (020 7812 1631). Also register and find out more details on the Hardest Hit website.

Once you've registered, you can email your MP to ask to meet with them as part of the lobby at the House of Commons after the march.

If you arrange a meeting, tell THT, who can advise on what you could say to your MP and ask for.
 

Benefits Help Leaflets

posted: 05/05/2011

Many people with HIV are facing changes to benefits and to help with this THT and NAT have two updated factsheets with useful information and advice.

The first leaflet gives general advice and information about benefits when living with HIV – it is for people with HIV who are on benefits, applying for benefits or considering
taking paid work which could reduce or change the amount of benefit.

It is designed to help people find out their entitlement and how best to manage applications, reviews and appeals.

It offers online, written, interactive and phone options for getting help because different people may find different ways of getting the information helpful.
Benefits Advice for People with HIV

On Incapacity Benefit? 

The second leaflet is for people already on Incapacity Benefit who will all have their claims reviewed over the next year or so. People will be reviewed and reassessed under the rules for Employment Support Allowance which replaces Incapacity Benefit.

From Incapacity Benefit to Employment Support Allowance

It makes sense to be prepared and seek help.
 

Image

HIV and Sickness Benefits

posted: 03/05/2011

Before the May Day holidays the Department of Work and Pensions got a lot of press coverage by claiming that its reforms of sickness benefits were working. It claimed three quarters of the people applying for the new Employment and Support Allowance (ESA) are either fit for work or stop their claim before they’ve had the medical assessment. They claimed this proved the need to urgently reform benefits, and that Ministers are right to reassess everyone on incapacity benefit.

Don't give up on benefits with HIV

People living with HIV who are claiming benefits for sickness – either Employment Support Allowance or Incapacity Benefit - should not feel intimidated. Benefit experts and the National AIDS Trust point out that the system isn’t working properly for people with HIV. But people with HIV very often win if they don’t give up, stick with their claims and get expert help. Very many people with HIV win if they appeal.

False logic

The Department of Work and Pensions is wrong to claim that lots of refused claims and high rates of drop outs from medicals prove the new system of ‘Work Capability Assessments’ is working. For people with HIV these show the system is seriously failing. People with HIV can and do win with help.


HIV and long term conditions

Research by NAT shows that people living with HIV are being found ‘fit for work’ despite medical evidence showing a range of serious physical and mental health problems. These include severe immune deficiency, co-infection with pneumonia or TB, fatigue, depression and debilitating side-effects from essential HIV treatment.

Deborah Jack, Chief Executive of NAT (National AIDS Trust), commented:

‘The refusal of 39% of ESA claims is not conclusive evidence that Work Capability Assessment (WCA) is effective. These claimants may be found ‘fit for work’ under the rules of WCA, but many face very real health-related barriers to work which have been overlooked during the assessment process.

NAT is also extremely concerned by the high drop-out rate of 36% before a decision on the benefits is made. Dropping a claim does not prove someone is not eligibile for Employment Support Allowance. NAT continued ‘An independent review of the Work Capability Assessment revealed serious problems with decision-making and administration, and real failures in the way the DWP communicated with claimants. Stopping a claim halfway, points towards fundamental flaws in the system – which are yet to be resolved.’

More information

If you live in NW England with HIV and and have problems with benefits please contact our support team

DWP statistics can be found here

NAT’s report ‘Unseen disability, Unmet needs - A review of the impact of Work Capability Assessment on people living with HIV’ 

The Work Capability Assessment (WCA) is the test undertaken to determine whether a person is eligible for Employment and Support Allowance (ESA). The WCA aims to identify claimants who have ‘limited capacity for work’ or ‘limited capacity for work-related activity’, so that they may receive the right support to help them live well and (where appropriate) return to work. Those who are found ‘fit for work’ are not entitled to receive ESA. The test contains a series of questions, called ‘descriptors’, which relate to physical and mental functions, and from which claimants score points.

The report of the Independent Review of the Work Capability Assessment

In October 2008, Employment and Support Allowance (ESA) was introduced to replace Incapacity Benefit and Incapacity-based Income Support as the primary income support benefit for people who are unable to work due to disability or illness.
 

Join HIV and Benefits Survey

posted: 16/02/2011

Lots of changes (including cuts) will be happening to the welfare benefits used by many people with HIV in the coming months and years. We need evidence now about how the changing nature of HIV affects people’s ability to do a paid job.
 

Would you please help our friends at NAT (National AIDS Trust) by answering their short (10 question) online survey about HIV-related symptoms of people living with HIV.

Please Take part in the quick survey, here

NAT are part of a national benefits working party trying to improve the Work Capability Assessment (which is used to help decide claims for Employment Support Allowance - the new benefit for sickness and disability).

The Work Capability Assessment fails many people with HIV – it doesn’t cope well where symptoms can come and go, like with HIV. Your answers will help us and NAT make it work better for people with HIV.
 

Be a big help for many

Your answers will help make a major difference to many people – everyone now receiving Incapacity Benefit will have to have their own Work Capability Assessment within the next 2-3 years. Many people are having to appeal bad decisions about this and 40% of the people who appeal refusals of these claims win.

The findings of this research will help NAT speak for the needs of people living with HIV who apply for illness and disability-related benefits. In particular, it will lead to recommendations to the second annual independent review of the Work Capability Assessment.

NAT will be on the working group which will recommend changes to the Work Capability Assessment (WCA) to more accurately and fairly assess people with fluctuating conditions, such as HIV.

Anything you can add?

NAT welcome other evidence about the impact of fluctuating symptoms on the lives of people living with HIV, and particularly want to hear the experiences of people who have HIV-related symptoms who have gone through the Work Capability Assessment.

For more information about the survey or the working group, or to send case studies and other evidence, please contact Sarah Radcliffe

Please Take part in the quick survey, here

End to HIV Health Staff Ban?

posted: 10/02/2011

The much criticised ban on surgeons and dentists with HIV from working could be lifted this year. At long last, the government is acting on HIV campaigners’ calls to end the employment ban.

Department of Health rules stop HIV-positive health workers from carrying out what are called ‘exposure prone procedures’ which are thought to risk HIV and hepatitis transmission. Basically 'exposure-prone procedures' are treatments where the healthcare hand goes inside the patient body, especially when there are sharp things like bones and surgical tools around - like when a dentist is extracting teeth.

But the rules are old and there is very little solid evidence of actual HIV transmissions from health care workers to patients. Despite this, the UK rules mean no dentist with HIV can carry on working as a dentist, and many midwives, surgeons, some nurses and ambulance workers have also had to end or change their careers.

Rules review

The Department of Health has now said there will be a review of the rules. HIV charities have been invited to join the working group that will draw up new guidelines.
 

The British bans on healthcare workers with HIV and hepatitis are stricter than in many European countries and the USA and Australia, where dentists with HIV can work, so there are alternative rules ready to be adapted for Britain.

Evidence gap

With effective HIV treatments there is usually almost no virus in healthcare workers’ blood, so whatever risk there was, is even smaller now, say campaigners. It is extremely unusual for blood-borne viruses to be passed between doctors and patients. Only four patients worldwide are thought to have contracted HIV from health workers. There have been no transmissions from healthcare workers in the UK. And there are significant doubts about the evidence even for these few transmissions. 

Deborah Jack, chief executive of the National Aids Trust, said ‘advances in testing technologies and treatment’ and ‘high levels of infection control’ supported calls for change.

Catherine Murphy, of the Terrence Higgins Trust, added: ‘We’re not saying entirely lift restrictions but it is time for another look – especially for dentists.’ The British Dental Association has backed calls for change.

UK healthcare workers and exposure prone procedures policy

Source