GHT's Trustees agree a Strategic Partnership Position Statement

posted: 02/06/2011

This position statement comes during the worst economic recession to impact on the voluntary sector in the UK in living history. As a consequence, many charities face significant funding cuts, some have already ceased trading and up to 50% of charities in the UK are not expected to survive the recession.

The Trustees of George House Trust (GHT) are particularly concerned about the future of HIV social care services for people living with HIV across the North West of England.There is a real danger that the strong legacy of the HIV social care sector could be lost.

GHT’s Trustees believe that it is vital that HIV social care provision is maintained for all people living with HIV.In order to achieve this, charities within the HIV sector in the North West, and across the UK if necessary, will need to explore dynamic and creative ways of working together strategically.

This work could take a number of forms: from greater sharing of information and knowledge through to pooling resources, joint funding applications, influencing commissioners, forming consortia in order to win contracts and mergers.

GHT welcomes opportunities to explore new ways of working with highly regarded charities within the HIV sector. This will help to ensure the survival of HIV social care services within the North West. 

Anyone requesting further details should contact our Chief Executive Rosie Robinson.

HIV Message to Social Services - Protect Funding

posted: 09/02/2011

Deborah Jack, the chief executive of National AIDS Trust, has now written to every director of adult social services, calling on them to protect spending for people with HIV.

We very recently reported (Disadvantage Affects HIV Futures) how much of a difference support to end people's social disadvantage makes to whether people live well with HIV, or fall ill and die early.

This multinational study showed that social disadvantage - poverty, class, gender, ethnicity - make a critical difference to how long and healthily people live with HIV. People nearer the bottom of the heap – because of low income, poverty and social disadvantages - get ill much sooner, and die much younger.

That’s why spending on HIV social care matters. It makes a clear difference in life and death.

Here’s what Deborah Jack wrote and told all the Social Services directors :

Dear Director

The importance of social care for people with HIV

Our chair, Dame Denise Platt, has asked me to write to you, in your capacity as director of adult social services, to highlight the vital importance of continuing to fund social care services for people living with HIV over the next year.

As you will know, the Aids Support Grant, which funded social care for people with HIV, is now part of councils' overall formula grant. However, AIDS support remains an identifiable allocation specifically calculated to enable you to meet the needs of people with HIV in your area. I am sure you will be aware how much your council has been allocated for 2011-12, We firmly believe that spending this allocation on services that meet the specific needs of people living with HIV will deliver value for money and be a cost-effective investment in the long term.

Social care for people with HIV provides a lifeline for many vulnerable people, enabling them to retain their independence and have as normal as possible life. The government has clearly identified this as a primary aim and has acknowledged the continuing need for HIV social care and the necessity to protect these services through the continued existence of a specific and distinct amount of money with its own allocation formula.

Investing in HIV social care services has long-term benefits both in terms of the council's finances, but also for the health of your local population. Good-quality social care is an essential part of keeping people well and avoiding expensive hospital in-patient care and more complex and costly community support. The closer liaison between yourselves and the local NHS as we go forwards only goes to further increase the benefits of the continued funding of HIV social care.

A reduction in HIV social care services will also have public health implications which, with the council's forthcoming public health role, should be taken into consideration when determining funding now. Research shows that when people with HIV are suffering from depression and other forms of psychological distress they are less likely to adhere to their HIV treatment. Non-adherence not only impacts on the individual's own health but also on the health of others, as they become more infectious and therefore there is a greater risk they will pass the virus on, creating further demands for local health and social care services.

HIV social care provides a wide range of services including counselling, peer support, support for carers, respite care and support for children and young people affected by HIV. Many of these services are provided by small community-based voluntary organisations who deliver value above and beyond the direct cost of the services. As well as delivering support these organisations often provide a voice for people living with HIV at a local level, but a reduction in short-term funding for HIV social care services by the council may well threaten their future viability.

I hope that the issues I have highlighted above will serve to convince you of the importance of using the money allocated to 'HIV/AIDS support' within the formula grant to continue to fund essential social care support for people living with HIV. If you would like to discuss any of these matters further please do not hesitate to get in touch.

Yours sincerely,

Deborah Jack

Keep HIV in Focus - Crusaid-THT

posted: 16/06/2010

The chief executive of National AIDS Trust urges a continued focus on HIV welfare, following Crusaid's merger with Terrence Higgins Trust, which was announced on Monday.
Deborah Jack expressed her sadness at seeing Crusaid come to an end after 20 years and voiced her worries for the future, in an interview with the PinkPaper.
 

“My main concern is that we’ve lost a charity solely focused with HIV into an organisation which covers all aspects of sexual health. Crusaid always supported those in the greatest need.

The important thing now is making sure … people [living with HIV] are still given the focus they require. Tensions may arise …. as Crusaid staff are used to working on more specific issues around HIV. I am, however, pleased THT have made a public commitment to continue the hardship fund which provides a valuable lifeline for … people living in poverty with HIV."
 

AIDS Support Grant risks
The merger comes just after Communities Secretary Eric Pickles’ announced that the AIDS Support Grant (ASG) will no longer be ring-fenced. This means that this £25.5 million grant (almost £2 million is for NW England) does not have to be spent on social care for people living with HIV. Deborah Jack believes it is important to hold local authorities to account for how they spend this money, otherwise there could be major repercussions, highlighted in a recent report that NAT produced with Crusaid into the need for the Crusaid HIV hardship fund.
 

“In the report we found that 1 in 6 people being treated for HIV applied for help from Crusaid with an average income of just £42 per week. One of the main problems is that many charities rely on contracts from central or local government and without the [AIDS Support Grant] money it might put lots of the smaller charities supporting people on the ground into financial difficulties. A lot of charities use the money they get from the AIDS Support Grant to provide counselling and peer support for people living with HIV. If this money isn’t being spent [on HIV anymore] then these services will be cut and then people in the greatest need will not have the same emotional support, which may lead to … [people living with HIV] becoming isolated and depressed.”
 

Source PinkPaper

Saving AIDS Support Grant

posted: 26/05/2010

Before the election, the end of ring-fenced AIDS Support Grant for local councils was announced. The new coalition government has now said it will phase out all types of ring-fenced grants for councils.
 

National AIDS Trust has now written to Paul Burstow (Lib Dem, Sutton & Cheam in Surrey), the new Minister for State for Social Care Services, setting out the need to continue to ring-fence AIDS Support Grant after 2011.

It has also written to Anne Milton, the new Parliamentary Under-Secretary for Public Health.

The new Government has emphasised the importance of public health interventions, and NAT stress the potential public health implications of removing of the ring-fence. Because of this, and given the recent commitment to phase out ring-fenced grants for local authorities, NAT also suggests that the Grant could be paid to PCTs instead, rather than local authorities.
 

Add Your Voice

Organisations and individuals may wish to write to Paul Burstow, or their local MP, to emphasise the vital role of the ring-fenced ASG. NAT’s letter to the minister can be used by people and organisations to make the point that the ring-fence is still needed.
 

Any letters to the minister should reflect the local situation. You might emphasise these points:

• The important role ASG funding currently plays in funding local services
• The impact the loss of the ring fence would have on funding for HIV orgnaisations (it is far less likely that local authorities will continue to fund services without the ring fence - what would happen to people if support is no longer available?)
• Some case studies showing the difference the Grant makes to the lives of individuals and families in your area

NAT 2009 report on The AIDS Support Grant – Making a Difference?

 
Latest Department of Health details on ASG allocations for each council in England and how it should be spent  
 

NW England
AIDS Support Grant 2009-2010 and total HIV population by social services district
download our handy guide for NW England here

The AIDS Support Grant allocations for the current year, April 2010 – March 2011, have not been published – it should be listed as a circular here

Here is gathered information from Freedom of Information requests on AIDS Support Grant in different parts of England 

text of NAT letter to Minister

AIDS Support Grant Ending?

posted: 04/05/2010

AIDS Support Grant seems to be on its last legs - the Communities and Local Government "Smarter Government" plan shows that AIDS Support Grant (ASG) will no longer be ring fenced from April next year - 2011. Instead this money would be included in the central government area based grant to councils for providing Social Services. A copy of the Smarter Government paper is attached and ASG appears on page six.

After the general election we, NAT and other HIV organisations, will consider what we can do to keep ASG with its ring-fence.

As councils and HIV community organisations revealed in NAT's recent survey, there are serious concerns for HIV services, if the ring-fence is lifted, at a time when there are major public spending cuts on the horizon.

NAT carried out a detailed review of ASG in 2009 
 

Smarter Government proposal to abolish ASG - see page 6