Join the Disability Benefits Survey

posted: 26/08/2010

We are keen to find out what people living with HIV think about how the benefits system works. The survey is organised by the Disability Benefits Consortium (DBC), a network of different disability charities and campaigns, including NAT (National AIDS Trust). George House Trust supports the coalitions study.

Please take part in the survey here

Finding out about you and work, Employment Support Allowance, Housing Benefit, Disability Living Allowance

The survey asks what you think about work, and if you have ever claimed Employment and Support Allowance – the new benefit for people who cannot work due to ill health or disability. It also asks about Housing Benefit and Disability Living Allowance.
 

The government is planning major changes to benefits, and already we know many people with HIV have serious problems with disability benefits. To campaign well for people living with HIV we need to know more about the experiences of people living with HIV, good and bad.
 

The survey ends on 20 October 2010. Take part in the survey in here please

If you have any questions about the survey or NAT's work on benefits, contact Sarah Radcliffe, NAT's Policy Officer 

 Disability Benefits Consortium 
 

Work Incapacity Tests – Have Your Say

posted: 09/08/2010

You can have your say in an independent review of how people’s fitness for work is checked by a medical, when claiming benefits for being too ill or disabled to work. People who claim Employment and Support Allowance have medical assessments as part of their claim. These are called ‘Work Capability Assessments’. The fairness of these is now being checked. We know many people with HIV are having serious problems with these.

Also people in Burnley who are on Incapacity Benefit are being put through these medicals as part of a national pilot. Beginning in February, everyone else on Incapacity Benefit will have to have one of these medicals. Many people living with HIV claim these two benefits.
 

Problems lead to review

The fairness of these medical assessments is being checked by an independent national review, led by Professor Malcolm Harrington, who is an occupational health expert. He will produce a report by the end of the year on whether the assessments are fair and transparent.
 

Have your say

You can have your say, based on your experience by Friday 10 September.

They ask a number of questions, but you don’t even need to answer these – simply say what happened to you, and whether you think the system works for people with HIV, or you could give plain and simple answers to questions 2, 3 4, and 6. Most of the questions are aimed at benefits experts.
 

Email your comments

or post your comments to WCA Independent Review Team, Floor 6, Section B, Caxton House, Tothill Street, London, SW1H 9NA.
 

What benefits and disability experts think
Disability charities say the current assessments tests are inflexible, and fail to take into account how long-term conditions (like HIV) can vary from day to day, or from week to week. George House Trust knows there are serious problems with the way these incapacity assessments are done and that people with HIV face a high rate of wrong refusals.
 

Atos Healthcare (who have the government contract for doing Employment Support Allowance assessments) appear to refuse to record basic HIV information like people’s CD4 count, admit their own ignorance about HIV and unwillingness to learn about HIV, don’t refer people with HIV to doctors for a full medical assessment as they should do, refuse to consider the ‘exceptional circumstances’ rules (regulations 29 and 35), and ignore medical reports from HIV doctors.
 

The advisers at Manchester Advice who specialise in HIV have won appeals before they can even say a word. Independent Tribunals have shown they are disturbed and surprised that plain evidence of obvious incapacity for work due to HIV is ignored, and at the failure to follow the rules.

 

How Fair Are Incapacity Tests?

posted: 30/06/2010

The government has just announced an independent review of how they assess the fitness of people claiming benefits for being too ill or disabled to work. People who claim Employment and Support Allowance and Incapacity Benefit have medical assessments to help decide their claim. Many people living with HIV claim these benefits.

The fairness of medical assessments will be examined in a national review of incapacity assessments, chaired by Professor Malcolm Harrington, an occupational health expert. He will produce a report by the end of the year on whether the assessments are fair and transparent.
 

Burnley first
It has also just been announced that Burnley people, including people living with HIV, will be among the first to transfer from Incapacity Benefit to Employment Support Allowance – and that will involved one of the assessments that are about to be reviewed.
 

Ministers have said they will starting two pilots projects to reassess the 2.6 million existing incapacity benefit claimants using the Employment Support Allowance rules. 1,700 people claiming Incapacity Benefit in Burnley and Aberdeen will start to be reassessed from October 2010, and then this reassessment will be extended nationwide from February 2011.
 

The assessments try to decide whether people claiming the benefits are in fact able to work, or whether they need some support, or whether they cannot work at all and need full sickness benefits for being unable to work at all.
 

Assessments not fair and not working
Disability charities say the current assessments tests are too inflexible, and fail to take into account how long-term conditions (like HIV) can vary from day to day, or from week to week. George House Trust knows there are serious problems with the way these incapacity assessments are done and that people with HIV face a high rate of wrong refusals.
 

Atos Healthcare (who have the government contract for doing Employment Support Allowance assessments) appear to refuse to record basic HIV information like someone’s CD4 count, admit their own HIV ignorance, don’t refer people with HIV to doctors for a full medical assessment as they should, refuse to consider the ‘exceptional circumstances’ rules (regulations 29 and 35), and ignore medical reports from HIV doctors.
 

The advisers at Manchester Advice who specialise in HIV are winning appeals almost before they open their mouths. Independent Tribunals are disturbed and surprised at how plain evidence of obvious incapacity for work due to HIV is ignored, and the failure to follow rules and proper procedures.
 

Disability Discrimination

George House Trust believe this is strong evidence suggesting disability discrimination in the way people with HIV are treated by Atos Healthcare and the Department for Work and Pensions. We are considering formal complaints and other action. 
 

Additional details added to Source 

Budget Pain Worse With HIV

posted: 24/06/2010

Low income is a major problem already for many people living with HIV. The emergency budget and service cuts will now make a bad situation even worse.

Here we try to pick out how the budget that is claimed to be ‘tough but fair’ will affect people living with HIV in NW England. We find out how tough and unfair it will be on many people living with HIV.

The Institute for Fiscal Studies analysis shows that the poorest 10% of the population (typically people on benefits and workers on the minimum wage) will face the worst financial pain of the whole population. Excluding cuts in Disability Living Allowance, Housing Benefit and funding for important public services like social care, over the next five years they worked out that the spending power of the poorest 10% of the population will fall by 2.6%.

Add in the affect of changes in disability living allowance, housing benefit cuts and cuts to public services and the poorer part of the population will suffer even more than this.

The budget will cut the incomes of the richest 10% of the population by just 0.6% compared with over 2.6% for the lowest income tenth of the population. How fair is that?
 

What we have to tell you below makes for depressing reading.

We think people with HIV have a right to know how the planned changes over the next five years could affect them.

These changes are not all cast in stone. They have to go through Parliament and you can tell your MP what you think.
 

Disability Living Allowance
Many people with HIV receive Disability Living Allowance (DLA), a benefit paid at different rates to compensate for disability and mobility problems. The budget announced that people on DLA will have a strict new medical examination; these medical examinations will start in 2013. Some people will lose DLA, others will go onto a lower rate. The government aims to cut spending by £1.4 billion within two years of these medicals starting.

We do not know yet if people who have DLA ‘for life’ will have these medicals.
 

Housing Benefit
Housing Benefit / Housing Allowance will be cut after one year by 10% for people claiming Job Seekers Allowance. The amount of Housing Benefit will also be capped, depending on how many bedrooms you have.This and other changes will be cuts costing people on the benefit £1.8 billion a year.

People will either have to pay the extra for their rent from their other income, move somewhere cheaper or smaller, and if evicted for rent arrears are likely to be refused rehousing as a homeless person. Eviction for rent arrears is treated as making yourself intentionally homeless so people are not entitled to be rehoused.
 

Unemployment
There are around 2.5 million people unemployed and about 0.5 million job vacancies. Unemployment is higher in NW England than most other regions. The job vacancies are often low paid.

The budget alone will increase unemployment by another 100,000 and independent experts expect it to reach close to 3 million.

Job seeking prospects will worsen and it is already harder to find work with a condition like HIV.
 

Slow-burn cuts and taxes
Over the next five years people on benefits will slip further behind in what their benefits will be able to buy and with tax changes.

VAT rises at the beginning of January to 20% and VAT always hits people on low incomes hardest.

Most benefits will be uprated for inflation in a new way that will leave people increasingly worse off. This will cut £6 billion from benefits over the next five years.

Child Benefit is frozen for three years from next April – a £3billion cut. Parents who are working will be compensated by Tax Credits, but that doesn’t help parents who aren’t working.
 

Social Services
Local Government and other public services are most used by people who are on lower incomes. Social Services departments of local councils now face cuts of between 25-33%. Social Services provide essential services to people with HIV and they help fund HIV community services like George House Trust.

The AIDS Support Grant which is used to pay for extra support for people with HIV and community HIV services is no longer protected by a ‘ring-fence’. This means councils can now spend it on whatever they like.

We don’t know yet how cuts of between one quarter and one third will affect essential social services for people with HIV and community organisations but we should start to know more from October. We can expect some painful cuts and changes.
 

NHS cuts
The NHS in NW England has been told to save almost £1 billion within the next three years. We do not know whether this will affect people with HIV.
 

State Pension Age to rise sooner
Details are sparse but the government is planning to raise the age at which men and women will get a state pension sooner than was planned. Men who are now 59 will have to work one more year before they can claim a state pension. Pension age will be 66, not 65 as now, for men from 2016. It does not stop there.

They are consulting about raising the pesnion age to possibly 70. Pension ages for women and men could be raised by one year every five years until it reaches 70 for both sexes. If they start this in 2016 as they say they now plan to, men now aged 40 would not get a state pension until they reach 70. Three out of four people will have some disability by the age of 68. Many people with HIV (among many others) are not fit enough to work until the current pension age of 65, particularly in a region like NW England.

Benefit cuts and changes will make it harder for people with disabilities like HIV to live with a decent fair income before pension age.
 

Expect more pain
In October the government will publish its Public Expenditure Review. We can expect lots more cuts in government spending. The government is already saying that it will try to reduce cuts in education and some other public services (but it has not said that it wants to protect social services) by making even more cuts and changes to benefits.
 

Since the second world war, no government has managed to cut public spending for more than two years in a row. This government plans five years of cuts.
 

Some reputable economic commentators, and President Obama, are warning that European countries are behaving like a panicking herd, cutting spending harshly and that this has a high risk of plunging the world into recession once again. The harsh medicine of cuts could kill economic recovery and make the situation even worse.
 

Heath Inequality
The Marmot Review earlier this year was to help the government plan policies that will end harsh health inequalities. It showed that the poor die 7 years younger than the rich, and the poor become disabled 17 years sooner. Cuts to services and benefits in NW England will worsen the already bad record of ill-health, disabilities and early deaths in this region. More unemployment and low income harms people’s health and well-being.

Reductions in benefits, and those 25%+ public service cuts expected in the Autumn Spending Review are estimated to increase alcohol related deaths by about 2.8% and cardiovascular deaths by 1.2%. Both of these disproportionately affect people living with HIV. Every £80 cut in social welfare spending per person causes this, according to a Europe-wide analysis by Oxford University epidemiologist David Stuckler, reported in the Guardian on 25 June and in the British Medical Journal. There are likely to be between 6,500  and 38,000 more deaths in the next ten years. If the economy worsens, extra deaths rise steeply. Apart from benefits cuts, it is cuts to social services and health budgets especially that cause the most health harm. 

The Treasury is ending the public sector agreement with the NHS to raise the life expectancy of the poor. Marmot presented the government with a vision and plan to make sure everyone has a ‘healthy income’, enough money to live healthy lives and improve life expectancy.

The budget and cuts to come make it even more likely we will go backwards and poorer people and people with disabilities, like many people with HIV in NW England, will face worsening life expectancy and poorer health.

Sit back or act?
These changes are not all cast in stone. They have to be passed by Parliament and you can tell your MP what you think. With your postcode you can contact your own MP here.

Help for people on Low Incomes on our website

Prescription Charges Review

posted: 01/06/2010

The long-awaited review of prescription charges by Professor Ian Gilmore has appeared. Over a year ago, Gordon Brown promised at the Labour Party Conference to end prescription charges for people with long term conditions. People with cancer were exempted from charges but people with other long-term conditions, like HIV, are still waiting.

The report recommends that people with long-term conditions should have free prescriptions. It sets out a plan for how the government should change the unfair prescriptions system to make sure people get the medications they need to stay well.

You can read the full report.

Depends on autumn spending review
The coalition government has welcomed the review, but says it will only consider this in the autumn, as part of the Spending Review. Many MPs already support this campaign.

HIV and prescriptions

Since the start of 2009 Greater Manchester HIV clinics (among most other HIV clinics) have stopped prescribing any drugs except those for HIV and their treatment side effects. People must now turn to a GP for prescriptions for all other healthcare needs, such as depression and anxiety, and sexual dysfunction.
 

Some help already available

For some people with HIV this means paying for these prescriptions - some people are exempt, some are exempt because of low income, and some people can buy a discount card. Find out what help is available with English prescription charges here.

There are 22 members of the Prescription Charges Coalition, including Terrence Higgins Trust:

Androgen Insensitivity Syndrome Support Group, Arthritis Care, Association for Spina Bifida and Hydrocephalus, Asthma UK, Behcets Syndrome Society, British Heart Foundation, Diabetes UK, Disability Alliance, FibroAction, Klinefelter’s Syndrome Association, Mind, Motor Neurone Disease Association, MS Society, National Ankylosing Spondylitis Society, National Association for Colitis and Crohn’s Disease, National Rheumatoid Arthritis Society, Parkinson’s UK, Pernicious Anaemia Society, Rethink, The Stroke Association, Skin Care Campaign, Terrence Higgins Trust