HIV in the UK

posted: 03/12/2010

The latest report on HIV in the UK has appeared from the Health Protection Agency. They found  the number of people living with HIV in the UK reached an estimated 86,500. A quarter of these people don’t know they have HIV.
 

New diagnoses among men who have sex with men stayed high (2,760); four out of five gay and bi men probably got HIV in the UK.
 

Of the people newly diagnosed in 2009, 1,130 probably acquired their infection heterosexually, within the UK, accounting for a third of heterosexuals diagnosed.
 

One in six gay and bi men, and one in sixteen heterosexuals got HIV within the previous 4-5 months before their diagnosis.
 

6,600 new people diagnosed

A total of 6,630 people were newly diagnosed as HIV-infected. This represents a fourth year-on-year decline, largely due to fewer diagnoses among people infected heterosexually abroad, mostly in Sub-Saharan Africa – there have been fewer migrants who happen to come from countries with HIV rates of HIV.
 

Older worries

Some 65,000 individuals accessed HIV care, of whom one in five were aged 50 years or over. Since 2000 there has been a three-fold increase in the number of individuals accessing care and a fourfold increase among older (greater than 50 years) individuals.

Sue Peters, regional director of the Terrence Higgins Trust in Brighton, said they are concerned at the number of older people becoming diagnosed in recent years. She pointed out that gay and bi men over 50 have lived through the worst years of HIV and men who remain HIV negative may now feel they are not going to catch it. Some men think that they do catch HIV past their 50th birthday, they are old enough for it not to cause any really serious harm.
“The same issue is with younger people who may still not be aware of the dangers of what is a life long infection. I think people sometimes feel they are immune but they aren’t and it is something that concerns us.”
 

Becoming HIV positive after the age of 50 is not recommended. The immune system becomes less able to fight serious health problems the older we get. People over 50 with HIV tend to be diagnosed late and often need to start HIV treatment immediately. Treatment for HIV becomes more complicated with older age because we often have other long-term health problems to do with being older.

Late too
Half of adults were diagnosed with HIV at a late stage of infection in 2009 (CD4 counts less than 350 within three months of diagnosis), the stage at which treatment is recommended to begin.
 

Thirty-seven English primary care trusts (PCTs) had a prevalence of diagnosed HIV greater than 2 per 1,000 population, the threshold at which expanded HIV testing should be implemented – in NW England these are Manchester, Salford and Blackpool.
 

Uptake of HIV testing was 95% in antenatal clinics and 77% among STI clinic attendees in England.
 

The quality of HIV care received is high. Based on London data, 80% of newly diagnosed patients were seen in an HIV clinic within one month of diagnosis; 90% had an undetectable viral load (less than 50) one year after starting therapy; and 93% of those in care for more than a year had a CD4 count above 200.
 

• HPA recommendations
  
• High proportions of recently acquired HIV infections among newly diagnosed gay and bi men of all age groups underscores the need for ongoing prevention efforts tailored to all ages in this group.
• The national recommendation of universal testing for all attendees of STI clinics should be audited and improved in many clinics; the existing national standard for HIV testing in STI clinics should be reviewed so as to encourage better performance.
• In high prevalence areas (greater than 2 per 1,000 people diagnosed HIV infection) the routine offer and recommendation to accept an HIV test for all adult general practice registrants and general medical admissions should be widely implemented given the recently reported success of pilot projects. The upper age limit for application of this policy should be set with regard to local circumstances.
• Roll-out of clinical outcome indicators to assess the quality of HIV care received by patients, already in place in London, should be extended to the rest of the country.

Sources

Health Protection Agency - HIV in the UK 2010, report and PowerPoint slides

Aidsmap 
 

Brighton Argus

PinkNews

Positive Gay Men's Bright Future

posted: 12/11/2010

Bright Future is the cover story in the latest issue of U+, for gay and bi men living with HIV. Mixed status relationships, insurance with HIV, being older, making new mates at Outdoorlads, and dealing with LGV and hepatitis C are all in the latest issue.
 

Mixed doubles looks at relationships where one guy is positive and the other negative. Tim tells us about making these relationships work and has some good tips.

Insurance of all types, life, travel, pension, and critical illness are all possible for people with HIV and Are you Covered? offers useful information and advice. We’ve found a useful Living with HIV – Financial Facts leaflet on the web.

Older and Wiser explores the world of older men with HIV and the realities of getting older and more experienced with HIV. The numbers of men with HIV who are over 50 are set to mushroom and will double within the next five to ten years. What’s around and what do older positive men need?
 

Walk on the Wildside is the story of Peter Scott, who makes tons of new mates, has gained a good physique, fitness and happiness, through activities across the country he enjoys through Outdoorlads.
 

In LGV: a bum deal Rob and Stewart tell their stories of anal encounters with LGV, and Simon is on the problem page worried about hepatitis C, after his mate got it and now has 6 months of treatment injections to face.
 

download U+ issue 6

Grub and Gossip Open Space

posted: 04/10/2010

This Tuesday's space is open to everyone with HIV. It is a Grub and Gossip open space as part of the celebrations in Manchester of the older people's Full of Life and Manchester Food and Drink Festivals.

This Grub and Gossip space is on Tuesday 5 October between 12.30pm – 2.30pm - the food will include traditional African tastes. 

• Crèche available for under 5s: please book
• Food provided and transport costs paid

African Space returns as normal on Tuesday 19 October.

More information: please email Siham
or ring her on 0161 274 4499
 

Over 50s HIV Infections Double

posted: 18/08/2010

New HIV infections among people over 50 have doubled in England, Wales and Northern Ireland in the last seven years, and almost half the over 50s were diagnosed late, according to a new study in the latest issue of AIDS.
 

More and more HIV experts are now thinking hard about older people with HIV. Not only are the numbers of older people with HIV rising steeply, older people are also getting HIV, health prospects are worse when you are over 50, and it is clear that there are some different problems in living with HIV when older.
 

This latest study looked at older people with HIV in England, Wales and Northern Ireland between 2000 and 2007. The starting point for ‘older’ is age 50 or over.
 

While the numbers of over 50s with HIV tripled between 2000 and 2007, there was also a sharp rise in the number of older adults getting HIV. Is the tripling of the number of people with HIV over 50 because people are living longer because of HIV treatments, or is it because more people are getting HIV after 50?

To find out the Health Protection Agency decided to analyse the national HIV data for the time between 2000 and 2007.
 

Nearly 1 in 10 new infections among people over 50
They found 8% of all new HIV diagnosis were among people over 50. But the new infection rate among over 50s is still rising and in 2007 it reached 9%. The number of older people who were newly diagnosed more than doubled, from 299 in 2000, to 710 in 2010. Almost three-quarters of these new diagnoses were people aged between 50 and 59.
 

Gay and other men who have sex with men were 40% of all the people diagnosed over 50. A third of the newly diagnosed were heterosexual men, and 25% heterosexual women.
Almost all (94%) the gay men are of white backgrounds. Older heterosexual men and women were rather more likely to be white than heterosexual men and women under 50.
 

8000 and rising
A total of 8255 older adults used HIV clinics between 2000 and 2007. This is 16% of all the people using HIV clinics.
 

Late diagnosis and AIDS
20% of the older adults developed an AIDS defining condition in the years 2000 - 2007. Mostly (91%) an AIDS condition was diagnosed within three months of diagnosis with HIV – this means HIV was diagnosed at a really late stage. This is twice the rate of AIDS diagnoses found among the under 50s.
The Health Protection Agency definition of late HIV diagnosis is when the CD4 count is below 200 at diagnosis. People diagnosed over 50 are significantly more likely to have a CD4 count this low than the under 50s (48% for over 50s, 33% for under 50s).

HIV treatment is now started normally when the CD4 count is around 350, so really many more people were diagnosed late than these HPA figures suggest. By the time the CD4 has fallen to 200 avoidable health harm has already been done.

More deaths, sooner
538 (13%) of the people over 50 died between 2000 and 2007. People diagnosed with a CD4 below 200 were 14 times more likely to die than younger patients with this CD4 count (14% for the over 50s, 1% for the under 50s).
 

Moreover, over 50s who are diagnosed late were approximately two and a half times more likely to die within a year of their diagnosis than under 50s with a CD4 count below 200.
 

The overall mortality rate amongst older patients was 25 per 1000 person-years. In contrast, the mortality rate for younger patients was half that - 12 per 1000 person-years.
 

Half got HIV after 50th birthday
Based on CD4 cell count at the time of diagnosis, they worked out that 48% of the older people with HIV got HIV when they were aged 50 and over. This percentage hasn’t changed between 2000 and 2007.
 

Three-quarters of individuals aged over 50 when they became HIV positive are men, and 54% were gay men.

Source

Reference Smith RD et al. HIV transmission and high rates of late diagnoses among adults aged 50 years and over. AIDS 24: 2109-2115, 2010.
 

Disadvantages for HIV+ Over 50s

posted: 22/07/2010

Older people with HIV face many disadvantages, study finds
Most people with HIV aged 50 and over can expect to live a near normal lifespan thanks to modern HIV treatments, but are substantially more disadvantaged than their people of a similar age who don’t have HIV.
 

According to 50 Plus, the first national study of ageing and HIV, launched in Vienna at AIDS 2010, the 18th International AIDS Conference, older people living with HIV have worse health, are poorer, and fear for the future.
 

Other health problems common

Findings show that older people living with HIV are twice as likely to experience other long-term health problems alongside HIV, such as high blood pressure, kidney and liver problems and arthritis, with two thirds having treatment for these other conditions.
 

Worse off and money worries

Older people with HIV are financially worse off than other people of the same age without HIV. Older positive people are less likely to be working, less likely to have savings or pensions for their retirement and more likely to be on state benefits. Many have serious financial worries about the future. Older people with HIV are less likely to be homeowners and more likely to live in social or private rented housing. One said: “Since I was diagnosed in 1985 I regarded this as a death warrant and ceased to make any pension provisions.”
 

Good health information is top priority

Older people with HIV say having good quality health and treatment information is their highest priority, but three quarters fear needing health and social care in the future. As another person said: “I also fear that, in case I need to be cared for, the carer would be as ill-informed and prejudiced about HIV as the rest of the general public.”
 

Involving older people

The 50 Plus survey was designed with older people living with HIV, and it investigated the needs and concerns of 410 people, to help raise awareness of the issues that this group face and to collect evidence of the specific social care needs.

The 410 people surveyed are one in 25 of all the people aged 50 and over who are using HIV clinics in the UK – there are now well over 10,000 over 50s with HIV, with almost 1000 in the NW of England. Within the next ten years the number of over 50s with HIV will almost double.
 

While most over 50s living with HIV are gay men and white, there are numbers of heterosexual men and women including Africans, among other ethnic minority people.  

Terrence Higgins Trust’s Head of Policy, Lisa Power, said: “As a result of effective treatment options, and our ageing population, the over 50s are now the fastest growing group of people with HIV in the UK, and there’s a long way to go regarding support for this group. Older people with HIV are living with high levels of uncertainty about their future health and social care and need substantially more support than their peers.
“The information we’ve gathered through ‘50 Plus’ is vital in giving us a better understanding of the unique problems that older people with HIV face on a daily basis in the UK. With this insight we can develop support services that are fully tailored to this group’s needs to ensure they have the same quality of life as their peers.”
 

Other key lessons

Other findings from the report show that:

• Older people with HIV are a rapidly growing and diverse group. The majority of this group are gay and bisexual men but there are also high numbers of African migrants and white heterosexuals. Some are long-term survivors, whilst others have been recently infected - one in five (21%) were diagnosed in the 1980s but the greatest number (41%) were diagnosed since 2000.
• Whilst older people with HIV think very well of their HIV clinicians, many report poor experiences in primary care, including discrimination, ignorance and a low standard of clinical treatment, and use their GPs and generalist healthcare services less than older people in general. Many also fear that social care services, care homes and sheltered housing might be HIV prejudiced and/or homophobic.
• Many report feeling isolated and would like more social contact and support. Most prefer to find this through HIV organisations.
• Most were open about their HIV status in key relationships and usually get positive reactions; however, telling others about having HIV is still seen as risky.

In response to these research findings, Terrence Higgins Trust, Age UK and The Joseph Rowntree Foundation made five calls for action:

1. Improvements in healthcare to ensure access to good quality treatment in all settings and availability of better information to older people with HIV.
2. Better employment support, money management courses and benefits advice.
3. Action to deal with homophobia, HIV discrimination and ageism in all services, but especially in social housing, sheltered housing, care homes and health services (particularly primary care).
4. Improved emotional support and opportunities for social contact, to prevent isolation.
5. Greater cooperation and information sharing between organisations and services for older people, and those for people with HIV, to improve policy and practice.

Michelle Mitchell, Charity Director at Age UK, said: “This report clearly shows that the problems many of us face in later life, such as financial pressures, deteriorating health and isolation are all exacerbated by the impact of HIV on people’s lives. Now people are living far longer with HIV than ever before, we need to shift the focus on support services to improving quality of life. To achieve this, it is vital that we increase awareness and understanding of the needs of this group across a range of health, social care, housing and advice services.”
 

Terrence Higgins Trust, Age UK and other HIV organisations like George House Trust, will be using the findings to help development services.
 

50 Plus    4 page summary available now 

The full 50 Plus report will be available from October 2010 at The Joseph Rowntree Foundation

Further data, including all statistical charts and the full literature review, will appear in the autumn in a special section of the THT website.
 

About the study

50 Plus research was conducted through an online and paper questionnaire and 40 in-depth interviews from a sample of adults aged 50 or over with HIV across the UK in 2009. The 50 Plus report is was based on the survey findings. The questionnaire was devised with the support of a Community Advisory Panel and interviews conducted by trained community researchers living with HIV. A literature review and visits to existing ageing and HIV work in the US were also undertaken. Age UK is the name for the merger of Age Concern and Help the Aged. The Joseph Rowntree Foundation (JRF) is one of largest social policy research and development charities in the UK. It aims to influence policy and practice by searching for evidence and demonstrating solutions to help overcome the causes of poverty, disadvantage and social evil.

Source