Lost to Care

posted: 25/11/2009

People diagnosed with HIV who drop out of HIV clinics was first highlighted as national issue by George House Trust in Insight this year. Now people lost to clinics and care is covered in more detail in an excellent leading article in the latest issue of NAM's HIV Treatment Update.

'Lost to Care - the mystery of the disappearing patients' by George House Trust policy expert Chris Morley and editor of HIV Treatment Update Gus Cairns, tells why up to 1 in 3 people disappear from HIV care at some stage after diagnosis, whether this puts people’s lives in danger, and it offers some suggestions for how to deal with clinic drop out.

Stigma too
The same issue has an article on HIV stigma – Punching Fog. It tells how people with HIV telling their own stigma experiences through the UK section of the global website HIV Stigma Index is helping the stigma fight-back.

HIV Treatment Update

People living with HIV can get HIV Treatment Update free, others have to subscribe and pay; this issue (November 2009) will be published in a few months in the online archive, also on that webpage.

50 Pounds for Fun and 100 Words

posted: 29/10/2009

Go out and have fun with some positive friends, write 100 words about it, take a photo (if you can) and send it all to Gus. Be quick - it needs to reach him no later than Friday 4 November. Gus says even a two-sentence quote will do, he doesn't want it to seem like an assignment!

Every published piece of writing for the Christmas and World AIDS Day issue of HIV Treatment Update will get £50.
 

Gus Cairns wants the Christmas/World AIDS Day issue of HIV Treatment Update to talk about your experiences of HIV socialising: how you meet other positive people and have fun with them.

The idea is to have it written by the people who go to groups and people who do things. It doesn’t matter if you think you can’t write proper English – send it in and he’ll tidy it up.

How do you  beat isolation and stigma?
As Gus says, HIV positive people often face isolation and stigma (sometimes self-imposed) but in line with the piece on happiness in the last HIV Treatment Update, they want people’s stories of how you overcome isolation and stigma.

• Do you have a circle of HIV positive friends you network with, or an HIV+friendly circle?
• How important is the social support of other HIV+ people to you?
• What activities do you enjoy doing together? Or
• Do you feel you lack social support and would like somewhere friendly and informal to go to?

The definition of a “social group” for this article is that it could be formal, semi-formal or completely informally organised, but shouldn’t feel formal.

Is my group OK?

• If it’s a formal group run by an organisation (HIV or otherwise), it should feel like a fun place to go: one of the African ‘let’s get together and have a meal and a chat’ groups for instance. Or an HIV disco night. Or something.
• Semi-formal means something like the London gay men’s HIV Meet-Up group.
• Informal means any group of poz friends who get together to do stuff now and then.
• It should NOT be about a “support group” in the classic sense. i.e. we don't want something about counselling or groups for people who are newly diagnosed.
• The other exclusion is that this isn’t primarily a piece about sex, dating or finding love, and although you may find romance (or a shag) in social groups, the emphasis is on meeting and hanging out with friends and potential friends.

Photos? permission and confidentiality
If you do go out and end up sending in photos, PLEASE make sure you have people’s consent to be featured in HIV Treatment Update and that the person's pictured are happy with people knowing or assuming that they may be HIV+. Alternatively, take photos that don’t identify people.
 

All contributions welcomes – this is a chance to get your name (disguised if you want) in HIV Treatment Update.
 

Send your pictures and words to Gus, editor of HIV Treatment Update by Friday 4 November.

How can I get HIV Treatment Update?
You can get HIV Treatment Update free here (pdf version)
click Add to basket, then (top right in basket area) click Proceed, then at the checkout click Proceed , and on the next page give your email etc details.
 

You can get a printed copy posted free here (free print version for people living with HIV) - simply follow the instructions above
 

Photos of Fun and 100 Words

posted: 02/10/2009

We want you to go out and have fun, write 100 words about the experience, ideally take a photo and send it to Gus.

Gus Cairns wants the Christmas/World AIDS Day issue of HIV Treatment Update to talk about your experiences of HIV social networking: how you meet other positive people and have fun with them. The idea is to have it largely written by the people who go to groups and people who do things. It doesn’t matter if you think you can’t write proper English – send it in and they’ll tidy it up.

How do you beat isolation and stigma?

As Gus says, HIV positive people often face isolation and stigma (sometimes self-imposed) but in line with the piece on happiness in the last HIV Treatment Update, they want people’s stories of how you overcome isolation and stigma.

• Do you have a circle of HIV positive friends you network with, or an HIV+friendly circle?
• How important is the social support of other HIV+ people to you?
• What activities do you enjoy doing together? Or, on the other hand,
• do you feel you lack social support and would like somewhere friendly and informal to go to?

The definition of a “social group” for this article is that it could be formal, semi-formal or completely informally organised, but shouldn’t feel  formal. 

• If it’s a formal group run or facilitated by an organisation (HIV or otherwise), it should be something that feels like a fun place to go: one of the African ‘let’s get together and have a meal and a chat’ groups for instance. Or an HIV disco night. Or something.
• Semi-formal means something like the London gay men’s HIV Meet-Up group – which is a model for this sort of thing.
• Informal means any group of poz friends who get together to do stuff now and then.
• It should NOT be about a “support group” in the classic sense. i.e. we are not looking for a piece on counselling or therapy groups for people who are newly diagnosed or whatever. These are a great resource, but not what this piece is about.
• The other exclusion is that this isn’t primarily a piece about sex, dating or finding love, and I don’t intend to cover dating sites etc…although one may well find romance (or a shag) in social groups, the emphasis is on meeting and hanging out with friends and potential friends.

So…I’m hoping this will work and people will write in about their fave ways of spending time together.

Photos? permission and confidentiality

If you do go out and end up sending in photos, PLEASE make sure you have people’s consent to be featured in HIV Treatment Update and that they’re happy with people knowing or assuming that they may be HIV+. Alternatively, take photos that don’t identify people.
All contributions welcomes – this is a chance to get your name (disguised if you want) in HIV Treatment Update.

Send your pictures and words to Gus, editor of HIV Treatment Update 

How can I get HIV Treatment Update?

You can get HIV Treatment Update free here (pdf version)

click Add to basket, then (top right in basket area) click Proceed, then at the checkout click Proceed , and on the next page give your email etc details.

You can get a printed copy posted free here (free print version for people living with HIV) - simply follow the instructions above

AIDS Project 3 image from Bryan Rollins Blog

Treatments Update Session

posted: 15/09/2009

The latest news on HIV treatment will be given in a talk on Thursday 1 October at George House Trust. Simon Collins, one of the editors of i-Base, who produce many different HIV treatment information booklets, is giving an evening talk and questions and answers session. This Treatments Update session starts at 5pm and will finish at 7pm.

He will talk about the latest treatment news and choices, and answer any questions you may have about HIV treatment.

i-Base answer lots of questions about HIV all the time - they have section of people's questions and their answers on their website. You can ask your own questions online there.

i-Base also have a telephone Treatment Phoneline 0808 800 6013 from Monday - Wednesday  12-4pm. Calls to 0808 numbers are free from a BT landline. Other networks and mobiles may charge.

All their treatment booklets are listed here.

This talk is open to people living with HIV who are known to George House Trust.

Any questions about this event, please email Lynda or call her on 0161 274 4499.

HIV Information Update 4 April 2004

posted: 04/05/2004

Information will be available shortly