Speak at Positive Prevention Conference?

posted: 12/04/2011

George House Trust, the Manchester based HIV support organisation, runs a Positive Prevention project, funded by the Elton John AIDS Foundation. We are holding a free national conference in Manchester on 1st July for staff and organisations doing positive prevention work, to share best practice, and to consider developing minimum standards for Positive Prevention work.

Speakers Wanted

We are inviting people who would like to speak at this conference about their experience in Positive Prevention work to contact us.

Positive Prevention means working to support people living with HIV, where one of the benefits is reducing onward HIV transmission. Positive Prevention at George House Trust includes

• one to one support
• group "peer support" spaces
• courses for people newly diagnosed with HIV and
• reflective residential weekends for people diagnosed with HIV for longer than 12 months.

Most of our weekends and courses have been for gay and bi men, and we have run others for people living with HIV.

Call for speakers
If you

• Are working in an organisation doing ‘positive prevention’ work with people living with HIV, or
• Want to share the positive prevention work you are doing, or
• Have any data from positive prevention work which shows changes in behaviour or knowledge (we want the conference to hear evidence both of what works, and what doesn’t seem to work), or
• Want to highlight aspects of positive prevention work, or
• Are a person with HIV who has taken part in a Positive Prevention project, or
• Want to suggest a speaker with relevant knowledge or experience of Positive Prevention
  we want to hear from you.
   

Presentations can be in any format and would be for the whole conference, of about 35 people.

Please Contact Chris

If you are interested in making a presentation, please email Chris Morley with your proposal by Monday 23rd May .

Interested in attending?
This conference is only for people and organisations already doing Positive Prevention. If you would like to come as a delegate to the Positive Prevention conference, please contact Chris.  
 

What some people with HIV have said about our residential weekends

• The weekend really helped me to identify where I am now - and to look clearly at what I need for the future
• I learned so much from the other men and really now feel focussed on making positive changes
• It helped me connect, and gave me support and direction
• The weekend has given me a real boost and I feel now like I can face some of my issues in a constructive way and really move forward
• Thanks for a great weekend which has helped me think about how I deal with some of my fears and anxieties about living with HIV
• The weekend gave me a sense of space and safety to be able to talk more confidently about living with HIV now and in the future.

Fresh Gay Men’s HIV Prevention

posted: 16/03/2011

HIV prevention work for gay and bi men in England has been freshened up in the latest edition of Making it Count. Making it Count is the HIV prevention framework used in England by gay men’s and other HIV prevention organisations.
 

Making it Count first appeared in 1998 and the new edition describes how to do HIV prevention and education with gay and bisexual men. It’s been totally rewritten and is available here. It's produced by the CHAPS gay men's HIV prevention and sexual health partnership.

George House Trust is not part of CHAPS but we play a lively and active role. At the CHAPS conference last week we made two conference presentations based on our experience of the sexual health and HIV support needs of HIV+ gay and bi men.

George House Trust also made detailed comments and suggestions for improving the latest Making It Count.

Risky Choices

The new edition of Making It Count considers the various choices facing men who have sex with men that make a difference to HIV transmission, and puts more emphasis on what motivates and drives men in making these critical decisions on sexual risks.

Making It Count brings education and empowerment together in HIV prevention, in a way that values and respects gay and bi men, including men with HIV. It includes using social norms to influence men’s sexual behaviour.

Best Sex with Least Harm
Making It Count aims to promote the best sex with the least harm among gay men and bisexual men.

Making It Count Briefing Sheets

Making It Count Briefing Sheets are also available. These are handy summaries of the evidence on important HIV prevention and sexual health issues.

Making It Count Briefing Sheets already available are 

• Using fear in HIV prevention
• Herpes
• LGV
• Gonorrhoea, chlamydia and non-gonococcal urethritis (NGU)
• Hepatitis C
• Social marketing.

Future Briefings will soon be added for

• Poppers
• Microbicides
• PEP
• Undiagnosed HIV infection.

Making It Count Briefing Sheets

Making It Count from Sigma Research

Talking and Telling about HIV

posted: 28/02/2011

There’s a lot of fuss made about how important it is for gay and bi men diagnosed with HIV to tell their sexual partners about HIV, before any sex takes place – which is known as ‘disclosure’.

Telling people whether or not you have an STI / HIV is your choice.

We think it is smarter if every  person in the UK were to talk about HIV and discuss their and partners’ HIV and STI status and risks before sex. But telling others about having HIV is always a choice.

One-sided talking

One major problem is that undiagnosed people, including gay and bi men, rarely ever talk about their own HIV status, but instead expect diagnosed people to always reveal their HIV status.

Some undiagnosed men then decide not to have sex, or decide on less risky sex after the partner says they have HIV.

Conference debates

George House Trust has critically examined the evidence for and against relying on being told HIV status as a way of avoiding getting HIV. Chris Morley, George House Trust's HIV policy expert, issued a challenge to gay men's HIV prevention workers when he gave a detailed presentation at the CHAPS conference last week for England's sexual health and HIV prevention organisations.

The challenge is to tell undiagnosed men that relying on being told by people with HIV is a seriously flawed way to try to avoid HIV. The HIV risk run by men expecting disclosure is simply too high. The challenge was also to help undiagnosed men be more respectful to anyone who does disclose having HIV. Some disclosing men with HIV are then shamed, abused, rejected, or worse.

Talking about HIV happens very unevenly and the expectations of disclosure put an unbalanced burden on people with HIV.

Dysfunctional Disclosure

The far bigger problem however, is that relying on being told, and being told accurately, is a highly risky way to manage anyone's HIV risks.

Only men diagnosed with HIV have HIV status information that is at all reliable.

Depending on men to tell you they have HIV puts you at a big HIV risk. Disclosure doesn't work at all well as a way of staying HIV negative. 

• 1 in 3 gay and bi men have never had a HIV tested - so untested, can't tell anyone anything useful about their own HIV status
• Men who have been tested usually only have information that is past its sell-by date
• Many men have had condomless anal sex since they had their last negative HIV test. An MOT certificate saying your car was roadworthy is no guarantee of future safety after you have had a crash. In the same way, a negative HIV test result becomes worthless once you have had unprotected sex.
• The only dependable information is from men who have been diagnosed with HIV to tell you this; but not all diagnosed men disclose in all situations; for example disclosure by diagnosed HIV+ men is less common in gay saunas and clubs.

George House Trust is also making a second presentation, about cuts in legal advice and representation for people with HIV. 

HIV Legal Advice Services
Among the hundreds of cuts, one cut would remove most legal aid for advice and representation at courts and tribunals. £450 million is to be slashed from budgets for advice, such as provided by Citizens Advice, Manchester Advice, Law Centres and other organisations, for immigration and asylum, welfare benefits, housing, employment and most discrimination cases.
 

This will affect millions of people a year, and you can tell things will become really bad, because even the Judges’ Council has gone public with its objections.

HIV Talking and Telling - George House Trust discussion for CHAPS-14 conference, Manchester  

HIV Advice Services - George House Trust discussion for CHAPS-14 Conference, Manchester

CHAPS-14 Conference, Manchester, March 9-11th

Image - Let's Talk HIV - Swedish language HIV site
 

Securing HIV Community’s Future

posted: 10/02/2011

The future for both people with HIV, community and council HIV services is threatened and unstable now because of the government’s responses to the economic situation. Despite the negative outlook, HIV organisations must focus on making the most of what opportunities there are.
 

A new report, Securing Our Future, makes eight action point recommendations for the HIV community sector, based on the views of people with HIV, findings from an online survey, and the views of HIV organisations.

Securing our Future was the work of three London-based HIV organisations - Naz Project London, Positive East and Positively UK (formerly Positively Women), working together as the Counterpoint Policy Alliance.

8 Community Actions

As a result of all the feedback received from the surveys, focus groups and stakeholders, the Counterpoint Policy Alliance identifies eight key action points or recommendations for the HIV charity sector:

1. Maximise the role of people living with HIV working as peers to address their needs and change perceptions about HIV
2. Ensure the sustainability especially of peer-based personal support services (one-to-one, mentoring and support groups), and mental health counselling for people living with HIV and their families
3. Facilitate a process among people living with HIV to build a shared vision of what the HIV charity sector would look like in 5 years, in 2016 
4. Increase innovative sharing and use of peer volunteers across HIV charities
5. Build a unified and strong advocacy voice across HIV charities
6. Initiate a mentoring programme where larger HIV charities are available to assist smaller ones as / if needed, e.g., to understand the changing economic and social environment, and analytical skills to accurately identify what the implications are for the organisation and how best to respond
7. Encourage more partnerships among HIV charities that share back
   office and service delivery functions
8. Explore merger options among HIV charities that avoid homogenisation, and maintain community relationships as well as the ability to target and tailor for specific needs and sub-populations.

As the report tells us “We are moving into an era of radical revamping of the NHS and how health and social care services are provided.

"It is vital that we maximise opportunities to ensure that the needs, views and experiences of people and communities affected by HIV are at the centre of public policy and development.

"In order to achieve this and take forward the above eight recommendations, there will need to be increasing levels of collaboration across the HIV charity sector.”

Securing our Future

Diagnosed in 1984

posted: 07/02/2011

Jonathan Grimshaw was one for the first people diagnosed with HIV in the UK, helping set up Body Positive and the Landmark in London. This Sunday he was the subject of a two page feature in The Observer.

By the beginning of 1987, Jonathan Grimshaw was the UK's most visible HIV-positive man. He looked striking: he was 32, bald and he often wore a bow-tie. He spoke eloquently about a terrible disease, something he'd been diagnosed with soon after the tests became available in February 1984.

With no specific treatments, his prognosis was not good, but he believed his best chances of survival lay within the realms of activism, honesty and education.

So he wasn't at all surprised one day to be seated on a sofa for an explicit live television programme with Claire Rayner. It was the first National Aids Week.

Read Jonathan's story here.